We are currently organising our third annual PPI in research conference in Galway. The conference is about involving lay people and patients as equal partners in our research. The aim is to create an environment where the voice of the lay person or patient contributes to research planning – nothing about us, without us.
We welcome lay people, patients and members of patient and community organisations to the conference. Come along if you want to find out more. You will get the chance to hear lay people talk about their experiences of helping researchers to plan and conduct their research.
At our conference in previous years, a number of lay people have spoken about their involvement with researchers. For example, in 2017 Caitriona Dunne, a staff member of the patient organisation Fighting Blindness spoke about her involvement while Denis Mockler, a member of our own PPI group, composed and sang a song about our group’s understanding of PPI. In 2016, Judith Sibley gave us an insider view to navigating the world of clinical trials, as the parent of a young child with a rare disease neuroblastoma and Michael Griffin spoke of the empowerment he experienced working as a co-researcher on a study on people with aphasia.
This years conference will be held on the 25th of April, you are welcome to come along. Registration is now open on Eventbrite and is free to members of the public, representatives of patient groups and representatives of community organisations. General registration is €50 and €20 for postgraduate students.