As part of the HRB Primary Care CTNI, we have set up a Public and patient partnership in research (PPP-R) group.
Aim: Group members will work with our research teams to make sure that the voice and perspective of the public help to shape and guide our research.
How we set up our group
We wanted a group that represented the mix of people that make up the public in Ireland. Our members come from urban and rural areas, they include a mix of age, nationality and gender. Each person has their own life experiences of interacting with the health care system and with family doctors in particular, which gives an interesting range of experiences to draw on when considering various questions about our research.
We set up our group early in 2016. We currently have 11 members. Our researchers are looking forward to working with our group members to help us do research that result in better patient health and healthcare.
We plan to develop two types of members: full members and non-travelling members. Non-travelling members will be able to contribute through email and by phone calls in different ways. So don’t let your mobility or distance from NUI Galway be a barrier!
Interested in getting involved?
If you are a member of the public, interested in getting involved in our PPP-R group, please check out the Get involved! section of the web site.
How the PPP-R group contributes
So far, the PPP-R group have helped us plan the annual National PPI conference advising us on topics of interest to the public and on what would encourage members of the public to attend. The members have also co-presented at conferences and even wrote a song about PPI written and performed by one of the partners, based on key themes identified by the group. The group also reviewed an outline of this web site and gave us feedback on the language we are using and the information they would like to see on the web site.
The PPI group have met thirteen times as of Feb 2019, advising twelve different research teams on specific aspects of their research. For example, they gave input into grant applications and an EU-funded project; provided perspectives on GDPR-related questions; and have been consulted on how to establish a PPI group. The group has contributed to setting research questions in two different disease areas to date and advised researchers working in multimorbidity, medication adherence and review, patient safety, hand hygiene, diabetes screening, and other areas.
As such, this group are now acting as a ‘go to’ national resource and have contributed to successful awards including a Health Research Board Knowledge and Exchange Dissemination Scheme (KEDS) Award 2018. This exciting project will fund a PPI documentary and represents a long-term project that is an excellent opportunity for shared decision making.