Parallel Conversation 2:

Should researchers be trusted with your health data? Dr Avril Kennan and Caitríona Dunne                       

This workshop is targeted at patients, carers and members of the public. The law has changed recently so that scientists now have to more fully inform patients how exactly their health data will be used for research. We want to hear from participants on their views about health research and what they want to know from researchers before consenting to give their data for research. We plan to bring the outcomes from the workshop to an upcoming meeting with policy and decision makers, in the hope of making health research work better for everyone.

Parallel Conversation 3:

Blurred boundaries: distinguishing between qualitative research and PPI in research – Dr Ruth McMenamin and Edel Tierney. 

Have you ever wondered what Patient and Public Involvement (PPI) is all about?

Is qualitative research PPI or is it a methodology in PPI?

What is the difference and when do you apply qualitative research in PPI?

Do you struggle to understand the difference between PPI in Research and qualitative research? If you do, then this is the workshop for you!

In this workshop, we will explore the similarities and differences between qualitative research and PPI in research. On completing this workshop, you will be able to:

  • Describe the key features of qualitative research
  • Describe the key features of PPI in research
  • Understand the similarities and differences between qualitative research and PPI in research
  • Apply your learning about qualitative research and PPI in research to a case study example
  • Understand the differences between ethical requirements for PPI vs. qualitative research

Parallel Conversation 4:

PPI in grant applications. Dr Caitriona Creely, Dr Kit Chan, Amie Regan and Dr Tonya Moloney

Do you want to start building more PPI into your research?

As a lay member/patient organisation representative have you ideas for involvement in health research?

The HRB are increasingly promoting PPI within funding schemes. In this session, small groups will focus firstly on the lay summaries of sample research studies. Groups will then investigate how patients and/or members of the public could be involved in each study.

The session will include a focus on planning PPI, centering on specific upcoming funding calls. Finally, the HRB would like to hear thoughts from participants on sustainable PPI in research. HRB staff will be present at the workshop to answer questions, and to hear feedback from the research and lay community involved. We expect this to be very interactive session