Public and Patient Involvement Resources

PPI in Research Conference 2017: see conference presentations

Our Network organised the second annual PPI in Research Conference in NUI Galway on 27 April 2017. You can view some of the conference presentations here.

A big thank you to all who contributed and attended, with presentations, other contributions and workshops delivered by both researchers and lay people.

If you attended the conference, we welcome your feedback, please complete the online survey you received in email or email us with any comments.

Web links to PPI organisations

  • INVOLVE UK  supporting active public involvement in NHS, public health and social care research.
  • PRIMER – Primary Care Research in Manchester Engagement Resource

PPI in Research Conference, Westwood Hotel, April 27 2016

Watch some of our speakers from the 2016 conference, for a flavour of PPI activity in Ireland and the UK, from the perspective of both researchers and lay people:

Professor Mary McCarron: working in partnership with people with intellectual disability

Professor Mary McCarron – people with intellectual disability were not just part of the Irish national longitudinal study on ageing but also influenced the design and conduct of the study, were involved throughout the research study, and helped to communicate the findings of the study in an accessible manner. Listen back to Prof McCarron at our PPI conference, telling of the many creative ways in which people with ID were involved in the IDS TILDA study and outlining the value system underlying this involvement.


Carole Bennett: a lay person speaks

Carole Bennett is the current chairperson of the PRIMER group in Manchester. PRIMER  is a group of patients, carers and members of the public who work closely with researchers in primary care at Manchester University, drawing on their life experiences to bring the voice and perspective of the public/patient into the planning and conduct of research.

Listen to Carole describing a range of ways in which she and the PRIMER lay group have made a positive contribution to research and how they have made a difference.

Young adults with diabetes re-imagine their health care

a young person is suddenly responsible for managing their diabetes – typically a parent would have been very involved in helping the child to manage their diabetes up to that stage.  This isn’t easy for the young person, attendance at appointments drops and some young people struggle.  Does the problem lie with the way we deliver diabetes care to these young adults?

Prof Seán Dinneen from NUI Galway’s School of Medicine and his team are taking a novel approach to finding the answer to this question: involve the young people in designing how diabetes care should be made available to their age group.

Prof Dinneen and Ciara Keighron, one of the young adults who is helping to redesign diabetes care,  spoke at our PPI conference about how the Young Adult Panel (YAP) is making a difference.