Research Priorities in Chronic Disease Management

Managing chronic conditions in primary care

We want to bring together those directly affected by chronic conditions – patients, carers, family, and healthcare professionals – to identify and prioritise their unanswered questions about managing chronic conditions in primary care in Ireland. 

To do so, the HRB Primary Care Clinical Trials Network are embarking on a Priority Setting Partnership (PSP) with the support of the James Lind Alliance to decide the top priorities for research about the management of chronic conditions in primary care.

Find out more

Find out more about the JLA PSP method by watching the video or clicking on the sections below. 

We’re really eager that this project reach as many relevant people with chronic conditions or those caring for them as possible. 

If you are a person with a chronic condition, the family, friend, or carer of someone with a chronic condition, or a healthcare professional who treats chronic conditions in primary care, we will be sharing a link soon to gather your research questions. 

If you are part of an organisation with a relevant audience, we are always open to new partners who could help us share our project widely. 

To receive updates on this project or to express interest in hearing about our survey, being a PSP partner, or to ask any other questions, please click here

We are working with our steering group to design the process for collecting uncertainties from those with chronic conditions, their family, friends and carers, and the healthcare professionals treating them

Once confirmed, we will begin collecting the views of patients, carers, relatives, and healthcare professionals.

Then, once responses are summarised and checked against existing research, the remaining long-list will be whittled down over a number of stages, before the final top ten is published and promoted.

If you would like to read our project protocol, a living document outlining our plans, please click here. 

Chronic conditions are incredibly common, and the management of chronic conditions is a major demand on primary care. In Ireland, the total number of people affected by just the top 4 chronic conditions (diabetes, asthma, cardiovascular disease and chronic obstructive pulmonary disease [COPD]) is approximately 1 million. With an aging population, these numbers will likely increase in the coming years, as will the pressure on those affected and the healthcare system. 

Priority Setting Partnerships or PSPs are a prioritisation process developed by the James Lind Alliance, that brings together patients, carers, and healthcare professionals to identify and prioritise the unanswered questions they have about a specific topic. 

PSPs are led by a steering group made up of key stakeholders with direct experience of the topic, and they have responsibility for all decision making during the PSP. They decide how best to collect and collate unanswered questions, and then sort and categorise questions into a list ready for ranking. 

Final prioritisation happens in a workshop setting, where a Top 10 list of questions is decided on. 

This list is then championed by the steering group and promoted to researchers and research funders to encourage them to incorporate these questions into future research. 

The James Lind Alliance, named after James Lind, a pioneering Scottish navel surgeon who trialled the use of citrus fruits to combat scurvy in the 1700s, are an organisation funded by the NIHR in the UK. They support the use of the JLA method of PSPs, which aims to address the mismatch between research being carried out and research that patients and healthcare professionals want. 

Scroll to Top